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Country documents
Belgium
KCE 112B «Politiques relatives aux maladies orphelines et aux médicaments orphelins, 2009» (Report of the Belgian Federal Centre of Healthcare Expertise) link
Bulgaria
National Plan for Rare Diseases 2009-2013 (Genetic, congenital malformation and nonhereditary disease - Unofficial English translation link
Denmark
Rare Diseases Research in Denmark: Barriers and Prospects (2004) link
France
French National Plan for Rare Diseases 2005-2008 (Ensuring equity in the access to diagnosis, treatment and provision of care) - English link
Plan national maladies rares 2005-2008 - French link
Evaluation du Plan national maladies rares 2005-2008 - French link
Propositions pour le Plan national maladies rares 2010-2014 - French link
Greece
Greek National Plan on Rare Diseases
link
Germany
Maßnahmen zur Verbesserung der gesundheitlichen Situation von Menschen mit Seltenen Erkrankungen in Deutschland (Measures to improve the health situation of persons with rare diseases in Germany - German
link
Joint Press Release: National Action League for People with Rare Diseases Launched (10/05/2010)
link
Joint Declaration and Agreement on the Establishment of the National Action League for People with Rare Diseases
link
Ireland
IPPOSI Information Document on Rare Diseases (19/02/09)
link
Portugal
Programa nacional para doenças raras (Portuguese National Plan for Rare Diseases) - Portuguese link
Spain
National Strategy for Rare Diseases - English link
Estrategia en Enfermedades Raras del Sistema Nacional de Salud - Spanish link
Rare Diseases in Extramadura (2004 Report) link
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