The work of the EUCERD in the scope of the EUCERD Joint Action will be carefully and regularly monitored and evaluated by a team at the Instituto Nacional de Saude Doutor Ricardo Jorge, Portugal.
This monitoring and evaluation of output and outcome indicators will ensure that targets are met and that the impact of the Joint Action on rare disease programmes at EU and Member State level is known.

Upcoming  reports/documents

  • Evaluation reports of EUCERD Joint Action workshops.
  • Recommendation for the preparation of EUCERD Joint Action workshops.
  • Evaluation report of the implementation of the EUCERD Joint Action.


  • Workshop on monitoring and evaluation of health projects in the field of rare diseases – 27 November 2014, Lisbon

Work theme leader :

Gloria Isidro – Instituto Nacional de Saude Doutor Ricardo Jorge (Portugal)

Gloria Isidro is a biologist who works in the field of human genetics, mostly in the area of rare disease diagnostics, at the Instituto Nacional de Saude Doutor

Ricardo Jorge.


The sole responsibility for the information provided in this site and the reports produced via the EUCERD Joint Action N°2011 22 01 published on this site lies with their authors: the Executive Agency for Health and Consumers is not responsible for any use that may be made of the information contained therein.