Workshop on guiding principles for social care

The workshop held on 9-10 October 2014 in Oslo, Norway, was organised through the EUCERD Joint Action (N° 2011 22 01) in the scope of WP6.

Workshop Objectives:
This workshop aimed to present examples of provision of social care in RDs in different MS, to stimulate the debate on social care provision for RD patients/families and to build consensus on a list of priority issues to be included in the a draft recommendation on social care for rare diseases to be considered for adoption by the Commission Expert Group on Rare Diseases.

Outcomes: