Workshop on the preliminary outcomes of the survey on centres of expertise

This workshop was held on 31 March-1 April 2014 in Madrid, and was organised in the scope of the EUCERD Joint Action (N° 2011 22 01), funded by the EU Health Programme in the scope of WP7.

Workshop objectives:

This workshop aimed to gather experts to discuss centres of expertise for rare diseases, an area where the EUCERD has already elaborated recommendations. In particular the objectives and the preliminary results of the survey undertaken by Work Package 7 of the EUCERD Joint Action were presented and discussed amongst stakeholders. This workshop also aimed to raise awareness of EC-supported initiatives in the field of rare diseases supporting the improvement of quality of care.

Outcomes: