Other resources

The Scientific Secretariat maintains a non-exhaustive list of websites and key texts at national and international level in the field of rare diseases.

National resources include websites of national interest in the field of rare diseases for each EU Member State and a selection of other countries, as well as key reports and documents such as national plans/strategies for rare diseases.

European resources include websites, key texts  and reports relevant to the field of rare diseases at European level.

International resources include websites, key texts  and reports relevant to the field of rare diseases at International level.