Press releases

Executive summaries of the EUCERD recommendations and workshop reports are produced by the scientific secretariat as well as conclusions of the EUCERD plenary meetings in PDF format.

If you need any additional information, please contact the Scientific Secretariat.

Follow the EUCERD Joint Action Twitter feed @RareDiseasesEU to keep up to date with project developments and RD initiatives.


MEETINGS


RECOMMENDATIONS

Centres of expertise & European Reference Networks

Clinical added value of orphan medicinal products

Registries:

Indicators:

 

WORKSHOP REPORTS

National plans:

Coding & international nomenclatures:

Specialised Social Services:

Quality of care:

European Reference Networks:

Registries:

Genetic testing:

 

STATE OF THE ART OF RARE DISEASE ACTIVITIES IN EUROPE

The sole responsibility for the information provided in this site and the reports produced via the EUCERD Joint Action N°2011 22 01 published on this site lies with their authors: the Executive Agency for Health and Consumers is not responsible for any use that may be made of the information contained therein.