The European Union Committee of Experts on Rare Diseases and EC Rare Disease Task Force have published the reports on the following subjects:

Annual reports on the state of the art of rare diseases activities in Europe

2014 Edition

Individual reports on the activities in each of the European countries covered by this year’s report are also available via the country pages of the ‘National resources’ sub-tab. A report is also available for the first time for Serbia this year.

2013 Edition

2012 Edition


2011 Edition

2010 Edition

Centres of expertise & European Reference Networks

Registries and Health Indicators


Rare diseases in international nomenclatures


Orphan medicinal products


OrphaNews Europe


Further details concerning the areas of work of the EUCERD Joint Action can be found here.