Reports

The European Union Committee of Experts on Rare Diseases and EC Rare Disease Task Force have published the reports on the following subjects:


Annual reports on the state of the art of rare diseases activities in Europe

2014 Edition

Individual reports on the activities in each of the European countries covered by this year’s report are also available via the country pages of the ‘National resources’ sub-tab. A report is also available for the first time for Serbia this year.

2013 Edition

2012 Edition

 

2011 Edition

2010 Edition


Centres of expertise & European Reference Networks


Registries and Health Indicators

 

Rare diseases in international nomenclatures

 

Orphan medicinal products

 

OrphaNews Europe

 

Further details concerning the areas of work of the EUCERD Joint Action can be found here.