Reports

The EUCERD Joint Action (N° 2011 22 01), the European Union Committee of Experts on Rare Diseases and EC Rare Disease Task Force have published the reports on the following subjects:


Annual reports on the state of the art of rare diseases activities in Europe

2014 Edition - arising from the EUCERD Joint Action N°2011 22 01

Individual reports on the activities in each of the European countries covered by this year’s report are also available via the country pages of the ‘National resources’ sub-tab. A report for Iceland is also available. A report is also available for the first time for Serbia this year.

2013 Edition - arising from the EUCERD Joint Action N°2011 22 01

Individual reports on the activities in each of the European countries covered by this year’s report are also available via the country pages of the ‘National resources’ sub-tab. A report for Iceland is also available.

2012 Edition - arising from the EUCERD Joint Action N°2011 22 01

Individual reports on the activities in each of the European countries covered by this year’s report are also available via the country pages of the ‘National resources’ sub-tab.

 

2011 Edition

2010 Edition

National Plans/Strategies for Rare Diseases

 

Centres of expertise & European Reference Networks


Registries and Health Indicators

 

Rare diseases in international nomenclatures

 

Orphan medicinal products

 

Specialised Social Services

 

OrphaNews Europe

 

Further details concerning the areas of work of the EUCERD Joint Action can be found here.

Disclaimer:
The sole responsibility for the information provided in this site and the reports produced via the EUCERD Joint Action N°2011 22 01 published on this site lies with their authors: the Executive Agency for Health and Consumers is not responsible for any use that may be made of the information contained therein.