Recommendations

The EUCERD issued the following 5 recommendations on centres of expertise, European Reference Networks, registries, indicators for national plans and improving informed decisions based on the clinical added value of orphan medicinal products:

RegRecoEUCERD Recommendations on Rare Disease Patient Registration and Data Collection (5 June 2013)

Executive Summary

Powerpoint presentation of the Recommendation (June 2013)

 

 

IndReco EUCERD Recommendations on Core Indicators for Rare Disease National Plans/ Strategies (6 June 2013)

Executive Summary

Powerpoint presentation of the Recommendation (January 2014)

 

 

ERNRecoEUCERD Recommendations on European Reference Networks for Rare Diseases (31 January 2013) and Addendum (10 June 2015)

Executive Summary

Powerpoint presentation of the Recommendation (January 2013)

 

 

 

Recommendations of the EUCERD to the European Commission and Member States on Improving Informed Decisions Based on the Clinical Added Value of Orphan Medicinal Products (CAVOMP) Information Flow (September 2012)

Executive Summary

Powerpoint presentation of the Recommendation (September 2012)

 

 

EUCERD Recommendations on Quality Criteria for Centres of Expertise for Rare Diseases in Member States (24 October 2011)

Executive Summary

Powerpoint presentation of the Recommendations (October 2011)

 

Translations:

 

Opinions

The EUCERD also issued the following Opinion.

NBS
EUCERD Opinion on Potential Areas of European Collaboration in the field of New Born Screening – July 2013

 

 

EC Expert Group on Rare Diseases