The EUCERD held three meetings per year at the European Commission in Luxembourg.
- Implementation of plans and strategies for rare diseases at national level (read more),
- Standardisation of rare disease nomenclature at international level (read more),
- Mapping the provision of specialised social services and integration of rare diseases into mainstream social policies and services (read more),
- Leveraging of the value of EU networking for improving the quality of care for rare diseases (read more),
- Integration of RD initiatives across thematic areas and across Member States (read more),
Other areas of work of the EUCERD included: patient registries, indicators, the clinical-added value of orphan medicinal products, genetic testing, and new born screening.