EUCERD replaced by new Commission Expert Group

May 30, 2014 in News

The European Union Committee of Experts on Rare Diseases was replaced from 2014 onwards by the European Commission Expert Group on Rare Diseases, established via Commission Decision 2013/C 219/04 of 30 July 2013 which had its first meeting on 11-12 February 2014 and which will meet again on 3-4 July 2014.

Theexpert group on rare diseases helps the European Commission formulate and implement policy to combat rare diseases.

The Commission expert group may:

  • assist the Commission in the drawing up of legal instruments and policy documents, including guidelines and recommendations;
  • advise the Commission in the implementation of Union actions and suggest improvements to the measures taken;
  • advise the Commission in the monitoring, evaluation and dissemination of the results of measures taken at Union and national level;
  • advise the Commission on international cooperation;
  • provide an overview on Union and national policies;
  • foster exchanges of relevant experience, policies and practices between the Member States and the various parties involved

A new site for the Expert Group is currently being created.

The members and their representatives to the Commission expert group on rare diseases were appointed by a Commission Decision of 7 January 2014 following a call for expression of interest.

The group is composed of one representative per Member State, stakeholder organisations and rare diseases experts.

The list of members of the new Expert Group can be found here.