Country editions of the 2012 EUCERD State of the Art Report available

October 30, 2012 in Report

Country editions of the 2012 EUCERD Report on the State of the Art of Rare Disease Activities in Europe break down data into national reports

For the first time, the Scientific Secretariat of the EUCERD has produced individual reports for each European country containing an extraction of the data published in the 2012 EUCERD Report on the State of the Art of Rare Disease Activities in Europe related to activities in that specific country. These country editions of the report provide both an overview of national activities up to the end of 2011, as well as a specific focus on the latest activities and developments in 2011. The reports are intended for use and dissemination at the national level, as an up-to-date source of information and support tool for stakeholders wishing to raise awareness of the field of rare diseases. These reports are now available on the EUCERD website in the pages dedicated to other resources at the national level.

2012 Report on the State of the Art of RD Activities in Europe

August 6, 2012 in News, Report

Each year the Scientific Secretariat of the European Union of Experts on Rare Diseases (EUCERD) elaborates a comprehensive report covering the state of the art of rare diseases activities at European and Member State level.

The 2012 Report on the State of the Art of Rare Disease Activities in Europe of the European Union Committee of Experts on Rare Diseases aims to provide an informative and descriptive overview of rare disease activities at European Union (EU) and Member State (MS) level in the field of rare diseases and orphan medicinal products up to the end of 2011.

The report is a valuable resource for the rare disease community and has been met with praise at both the EU and MS levels for providing valuable insight into understanding the current resources and activities in the field of rare diseases across Europe that will help determine future strategies to meet the needs of rare disease patients and their families in Europe and further afield.

The 2012 edition of the report is split into five parts this year:

  • Part I: Overview of rare disease activities in Europe
  • Part II: Key developments in the field of rare diseases in 2011
  • Part III: European Commission activities in the field of rare diseases
  • Part IV: European Medicines Agency activities and other European activities in the field of rare diseases
  • Part V: Activities in EU Member States and other European countries in the field of rare diseases

Part I is a general overview, geared to a more general public, whilst Parts II, III, IV and V provide a more detailled report of the situation for stakeholders who wish to learn more about the situation at European or national level. In addition, an individual document for each country covered by the report, containing the extracted data from the report, have been produced for the first time this year in order to encourage the dissemination of this information at national level.

The 2012 edition of the report been elaborated with the collaboration of the members of the EUCERD in concertation with a wide range of stakeholders at national level. This report is a deliverable of the EUCERD Joint Action (EJA) : Working for Rare Diseases (N° 2011 22 01). All parts of the report are free to download.

EUCERD Report: 2012 Report on the State of the Art of Rare Diseases Activities in Europe – Part I: Overview of Rare Disease Activities in Europe – July 2012
ISBN: 978-92-79-25355-3
EUCERD Report: 2012 Report on the State of the Art of Rare Diseases Activities in Europe – Part II: Key developments in the field of rare diseases in Europe in 2011 – July 2012
ISBN: 978-92-79-25357-7
EUCERD Report: 2012 Report on the State of the Art of Rare Diseases Activities in Europe – Part III: European Commission activities in the field of rare diseases – July 2012
ISBN: 978-92-79-25358-4
EUCERD Report: 2012 Report on the State of the Art of Rare Diseases Activities in Europe – Part IV: European Medicines Agency activities and other European activities in the field of rare diseases – July 2012
ISBN: 978-92-79-25359-1
EUCERD Report: 2012 Report on the State of the Art of Rare Diseases Activities in Europe – Part V: Activities of European Member States and other European countries in the field of rare diseases – July 2012

ISBN: 978-92-79-25360-7